Transforming Parkinson’s Care:
Advocacy Empathy and Community Action

Sep 11 2024.  Mary Kay Walker, CEO of Parkinson’s NSW, and Rachel Tanny, Chair of the Board were interviewed on Engaging Conversations, a podcast that aims to connect people with the pulse of their local communities.

Hosted by Leon Goltsman, Co-Founder of Ecolibrium, “This week, on Engaging Conversations, I speak with the CEO and Board Chair of Parkinson’s NSW to uncover the real impact and determine what needs to change. These powerful insights could inspire our elected officials to take action.”

EPISODE SUMMARY by Host Leon Goltsman.

What if you could change the course of Parkinson’s disease for thousands of people? Join us on a compelling journey with Mary Kay Walker, CEO of Parkinson’s NSW, and Rachel Tanny, Chair of the Board. You’ll hear their deeply personal stories, from Mary Kay’s pivot from corporate life driven by her advocacy for the ageing brain to Rachel’s dedication fuelled by her aged-care experiences. They highlight the critical need for better healthcare services and the urgent political action to address this rapidly growing neurological condition.

Our dialogue dives into the mission at the heart of Parkinson’s NSW. Mary Kay and Rachel open up about their daily operations, supported by vital services like an 1800 info line and counselling. They are all driven by a budget that relies heavily on community donations. Learn about the impactful work of their community nursing and support groups and their push for state and federal funding to ensure sustainable support. We highlight real-life success stories demonstrating their services’ life-saving potential and strategic priorities to meet the needs of the rising number of people with Parkinson’s.

In this candid episode, we also explore the unseen aspects of Parkinson’s disease, from depression and mood swings to its effect on those who are living with it. The conversation touches on the significance of empathy and communication in building trust in vulnerable communities. Discover how businesses and community organisations can partner with Parkinson’s NSW to create a more supportive environment.

As we wrap up, the emphasis is placed on the urgent need for increased governmental involvement and advocacy to improve healthcare interventions, prevent unnecessary suffering and enhance the quality of life for those affected by Parkinson’s. Tune in and discover how to be part of this crucial conversation.

If you have any questions please contact Parkinson’s NSW, call 1800 644 189 or visit their website at www.parkinsonsnsw.org.au