InfoLine ‘Top 5’ for February 2025

A monthly review of the top five topics raised by callers to the Parkinson’s NSW InfoLine.

The Parkinson’s NSW InfoLine (call 1800 644 189 9am-5pm M-F) is the single point of contact for people living with Parkinson’s, care partners, health professionals, and family members who require evidence-based advice, information, and connection with essential services.

1. Constipation:Constipation is a common challenge for people living with Parkinson’s, often linked to the condition itself or certain medications. Strategies to manage this include dietary adjustments, hydration, and gentle exercise. For more guidance, our team can provide resources or connect you with a dietitian experienced in Parkinson’s care.
2. Voluntary Assisted Dying (VAD) in NSW:With the introduction of Voluntary Assisted Dying laws in NSW, individuals and carers may have questions about eligibility and the process. Our InfoLine team can provide general guidance, discuss the role of your healthcare providers, and offer resources to help you navigate this sensitive topic.
3. Accessing My Aged Care:It’s important to arrange a My Aged Care assessment early, ideally before support is urgently needed. This proactive approach ensures you or your loved one are ready to access the services and support you need when the time comes. To get started, contact My Aged Care at myagedcare.gov.au or call 1800 200 422 for guidance on the assessment process and available services.
4.  Accessing the NDIS:The NDIS provides support for people under 65 who have a permanent and significant disability that impacts their ability to carry out daily activities. For those eligible, Parkinson’s NSW offers assistance through our NDIS Advocate, who can help with applications, pre-planning for NDIS meetings, and ongoing advocacy to ensure the services align with your needs. If you’re unsure about your eligibility, contact us or the NDIS directly for more information.
5. Dexterity Problems and Adaptive Clothing:Dexterity challenges are common in Parkinson’s and can make tasks like dressing more difficult. Adaptive clothing is designed to simplify dressing, featuring options like magnetic fastenings, easy-open designs, and elasticated materials. These innovations can support independence and reduce frustration in daily life. Our team can guide you on where to find adaptive clothing solutions in Australia

For personalised support or more resources on these topics, contact the InfoLine on 1800 644 189. We’re here to help!